It’s been almost 2 months of blending food for Josh now. Josh has been steadily losing weight since before his appendicitis in December. He was 61.5lbs on December 29. And today, he weighs only 53.2lbs. ☹️ We've been increasing his calories by giving him Pediasure daily and ice cream. (This he enjoys a lot).
This week, he has a barium swallow study and endoscopy scheduled, 2 days in a row. Which meant, Josh had to fast for 2 days straight.
The barium swallow study is a procedure where he drinks a syrup drink (dye) while lying flat on a machine. The machine watches the flow of the dye while it travels down the throat and upper digestive tract. We were informed that Josh’s anatomy is working perfectly fine. Yay!
Next, Josh arrived at the hospital and was all prepped to go for his endoscopy at 3:30pm. After waiting for 2 hours, we were told due to emergent surgeries that had priority, he wasn’t going to have surgery that day and had to be rescheduled.
I was very disappointed because we were heading to Toronto in May and I really wanted to find out the reason for Josh’s dysphagia. What else can we do but wait?
1 comment:
I'm so happy you are blogging again. I periodically check to see if you started again and pretty much give up years ago but today as I was blogging and I happened to hit my bookmark accidentally...and was happy to see you blogging again.
Sorry to read about Josh's dysphagia problem. Sad to read it's solid foods Josh can't sallow. Certainly don't give up, there is a reason and solution. My kids favorite ice cream shop is Rain and Shine (homemade natural and caters to allegories) maybe he'll enjoy.
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